Sunday, October 28, 2012

What a journey

I'm not sure where to begin.   It has been over a week since my last post, so forgive my absence.   Do I begin with an explanation of how nauseous I was all week?    How I had a great experience at a TCM doc with my first accupuncture experience?   Do I start with the fact that Andrew swallowed a penny that was lodged in his esophogus who had to be taken by two ambulances to two hospitals to be poked and prodded all night until he could go in for surgery to get it removed (sending mom and dad into panic mode for 12 hours?)    Oh and not to mention that Anna went "missing" while we were carting Andrew all over town to get this darn penny removed?   Really?   (And yes of course we found her).   I could also throw in that yesterday I was "fortunate" enough to be able to go back to Brigham and Womens for another surgery  on Saturday to remove the port which we believe was causing some excruciating pain?

Or do I begin by giving Thanks to Him for another absolutely stunning day here that we can enjoy before hurricane Sandy comes through our state?

Let's all begin by giving Thanks that we are here, healthy, able to take deep breaths to enjoy the crispness of Autumn.  Look outside your window, or better yet, step outside your door/building and take it all in.    I love this time of year.

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Now let's back up.  Last weekend I felt pretty good, and then the nausea began around Monday of last week.   It lasted until Wednesday when I decided it was time to go to the Traditional Chinese Medicine doc to get some herbs and acupuncture to see if it would get me out of my cycle.    It worked, between the acupuncture and ginger root, I was feeling better by Thursday afternoon.  

And then Andrew decided to swallow a penny.   Mom runs to the phone and calls 911.  The ambulance comes and takes us to Framingham Union hospital.  And x-ray is done showing that it is lodged in his esophogus.  Mom is freaking out.   They say we have to go in town where there are more advanced teams who can deal with this.  Mom freaks out even more.   We wait for an ambulance to take us to Children's down town.   They get us there by 10:00ish p.m.   By midnight, they say there is no way they can get us any OR space to get it out.  So they want to transfer us to the main floor (out of ER) where we will "sleep" until our 7:30 a.m. surgery.    At 2:00a.m. they have to stick Andrew six, yes six times to get an IV in him.   By then Mom sends Dad home to get the other kids up in the morning and ready for school and then to come back to the hospital after they are off to school.  

I have to skip the story about Anna going missing now, as it is too much to have to relate.   Rest assured she was fine, having fallen asleep at home under a pile of clothes in James room.  

Back to Andrew - They get an IV in him and then they transfer us up to the main floor since he was "stable". He might have been, but Mom wasn't.   As soon as they get us up there, Andrew throws up.   Again, Mom freaks out.   He was fine.    So he falls asleep, while Mom watches him for two and a half hours until they come to get him for surgery.  

As we are going down to pre-op at 6:30 a.m.  I am thinking about my 8:00a.m. chemo appointment  (just 1.5 hours away) just across the bridge at Dana Farber.   Hmm......   The surgeon comes to talk to me.  He calms me down and said that there was no reason for me to move my 8:00a.m. chemo, since Andrew will be  in the OR, and then in the PACU recovering.  

Friday, 7:30 a.m. -  They take Andrew off to the OR, fast asleep, and then they wheel Mom across the bridge to my 8:00 a.m. chemo appointment.  As Mom get's her chemo, I get a call saying that Andrew did well in surgery, and that the penny was safely extracted and that he was recovering nicely in the PACU.   Dad had arrived having gotten the kids off to school, to take Andrew home.    Andrew wakes up, happy as a clam as he gets to ingest as much ice cream and popsicles that he'd like.  The blessing in all of this, he never had trouble breathing.  The penny lodged itself perfectly up and down in the esophogus, not causing any problems.

My lovely neighbor, Selena came to the my chemo appointment to bring me home.    We get home to find Andrew back to his self, and mom just relieved to be home.  

Then a few other "angels" came over.  One with lunch, one to help me clean up my home, and another with dinner and home made ice cream!  

Where would I be without my "angels?"     That night with the kids off to bed, we are just happy to be home and in our beds.   I do believe I will sleep well as I hadn't slept the night before.   You think that would be the case right?   Well, the shoulder pain returns with a vengeance.   I may have slept for a couple of hours and then I was up with some pretty excruciating pain.    I call my surgeon at 7:00a.m.     I tell him, of the extreme pain I'm having and wondering if it has to do with my chemo port.    He agrees, that it could be that part of the port is hitting my diaphragm causing the pain.    I ask him if there was any chance he could get me OR space that day to get the port out.  He said it was highly unlikely, but he would try.

Blessing #2 in all of this, he got me OR space by 10:30 a.m that morning (Saturday).    Even after two days of no sleep I was THRILLED and had so much energy!  Once again, we shift the kids in multiple directions, and Nick get's me back to Brigham and Women to have the port surgically removed.    As I sat in the pre-op room, I recounted yet another big blessing.

Blessing #3- I was surrounded in the pre-op room by 3 anesthesiologists, two nurses, my surgeon and his assistant.  Just to have a port removed.  In addition to the staff, I realized how incredibly blessed we are to be in a place where there are more than enough surgical supplies, medications, clean facilities, etc. to minister to our needs.   How incredibly blessed are we?    I remember reading a story how in Greece the supply shelves are empty, medications are hard to come by.   How blessed are we?    More then we'll ever know.  

I come out of surgery feeling fine, and just plain happy that the port was gone.   So happy.   That night we even went to our churches dinner dance. Although we just went for the dinner portion.   Greek dancing after surgery and two days with no sleep, just wasn't on the agenda.   And that was okay.   We were surrounded by friends and a lovely meal.

Last night I slept well.  No shoulder pain, just a bit of pain from the incision.  But manageable.

Today we spent a truly blessed day with the kids chasing the leaves as they were blowing off the trees.  Raking them up and jumping in them.    We picked out our pumpkin and even carved it today.

I need to once again to say THANK YOU to the multitude of "angels" who are supporting us through this journey.  There is no way, I could be as strong as I am, if I didn't have your prayers and support.

I only ask that you take a moment as well, to realize the blessings in your lives.   And to thank God, for those.  Trust in His love for you.   Trust in His abilities to carry you through any storm that comes your way.   Put your lives in His hands.   I know I have.

Love to you all,
Renee

 








Friday, October 19, 2012

The Beginning

Today was my first day of chemotherapy.  Chemo for me will be approx 18 weeks, at once a week.   The doctors want to give me a round of chemo as an "insurance policy".   I had my surgery to remove three masses on September 20th.  One mass, surrounded one of my ovaries and the other two were found in my abdomen.  The mass in my ovary was cancerous.  Of the two masses in my abdomen, only one had a small nodule of cancer.

Blessing#1:   All visible disease was removed on Sep 20th.  ALL.
Blessing#2:   Mine is a low grade cancer.
Blessing#3:   It is also the most common kind of cancer.  The kind that actually is attracted to the chemo drugs.

Usually when you hear ovarian cancer, the words "silent killer" might pop into your mind.   And when I was in the ER room at Newton Wellsley hospital on Labor Day, and I heard the words ovarian cancer, I thought I might have two months to live.   I know what ovarian cancer means, and the outcome is usually a more fearful one.

But this is where my Turning Point came.  When I turned my life over to Him.  I knew that I know longer was  in control of my life.   I have always felt in control and capable.  But on Labor Day I knew it was out of my hands.

It was time to give my life to Him and let Him be in control.   And when I did that, everything changed.  Everything.   I was given the 3 greatest blessings as noted above.

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I'm getting tired now,  but I want to give you a data dump for the day today, my first day of chemo.  First we got Anna and James ready for their exercise program that started at 7:30 am. at school   From there, we went to Dana Farber Cancer institute.   I had blood drawn through an IV that was placed at 8:30a.m.    After that the fun began.    Nick and I headed to the "wig"shop!    I looked at a few different options of hair that looked similar to mine.   And then I looked at some really cool pink and purple ones!

I realize this may sound funny, but I'm looking forward to possibly having a bald head!   Nick and I will be bosom buddies.   I don't have to have a heavy pony tail all day, and I simply don't have to do my hair regularly.  Why not embrace it and have fun with it?!

I bought a few caps, including one for sleeping.   My friend Chrissa who has Alopecia, has helped guide me a bit.  She thought a sleeping cap would be a good idea for the winter months.  She may come over at some point soon, to hang with the kids.  She plans to take off her own wig, casually.  This way the kids will have their first exposure to someone else.

The lady at the wig shop told me of a place in Florida that will take your existing hair and sew it into a nylon cap.  Then all I do is throw a cap on and I'm done.  Voila!   Instant hair that was mine to begin with!
I will be exploring that option.

After that we met with the oncologist who went over the possible side effects of the drug.   And then off to get the infusion.  They weigh you a number of times and measure you to make sure they give you the right amount of the chemo.

I came in at a whopping 107lbs.   Down 11 pounds from when this all began.   And the bummer of it all is I can't engorge on refined sugar treats to bring my numbers back up!   My no read meat, dairy or refined sugars diet, doesn't alot for many calories.  So hopefully I can get through this without too much more weight loss

After the vitals were taken (for the 2nd time), I was taken to my private infusion room.  They hooked me up with some Benadryl to try to minimize the reaction to the chemo drugs.    While the infusion was going, I was talking with a social worker who gave me some great back packs for the kids filled with silly putty, markers, drawing pads, stuffed animal, and a book about having a parent with cancer.   I took that out and will review it soon to see how were are going to share the info.

A woman came around with books to offer. Selena my neighbor recommended I read Pillars of the Earth the day before. Surprisingly enough when the book lady, Mary, came around I asked her if she had it on her book shelf and she did!  She said in her 3 years of being the "book lady", that she has never had the specific books that people asked for.   She was so happy to pass this off to me.

Then the food lady came by offering sandwiches, popcorn, fruit, cookies and water for free!  It is not only free for the patient but also for anyone else in the room.  So for those of you who will join me for an infusion, your lunch will be taken care of =)

The Benadryl made me sleepy during the infusion, and continues to do so, but other than that, I'm feeling great!   I had no serious reaction  to the drugs in the hospital.  

Okay, I have to get the dinner on the table (compliments to Susan Lemeuix the chef for the evening) for the kids and then get them off to a birthday party.

Love to you all,
Renee







My Tourning Point 

A Journey of Faith and Hope


"Zoe" - Life- An amazing gift that we have been given.   A life that is ours to choose how we live it whether we invite God into our lives to guide us or not. It is ours to live. At times, lives are taken, many of us may think prematurely.  But I'm learning that there is reasons for physical death.  As hard as it is for us to accept when a young mother passes on, the reason for her death, may be for healing.  We have to accept that, and if we choose to ask God into our lives, we have to accept and THANK him for whatever we are introduced to in our journey.

That is what I'm learning.   When our eldest daughter Anna was born with Down syndrome, we knew she was given to us as a gift.  A gift that would teach us many of the principals that we are asked to live by.   Compassion, Love, Hope and Humility.    We know that she has not only affected our family, but also many other families that surround us.   

I'm learning also to thank God for allowing the ovarian cancer which I was diagnosed with recently.   Why would I thank God for allowing the cancer?   Why?    Because it has completely changed my life.   My intentions.  My love.   My hope.  My hope for everyone that is affected by this and who care.